Thursday, August 30, 2007
A very thankful Thursday!
I can't possible condense what I am thankful for this Thursday into a short list. So I will sum it up like this:
1. I am thankful for all of the friends who brought us meals while Jeff was sick: Sally, Robyn, Jenny, Sarah, Leigha, Jen, Joelle, Liz, Sheri, Marni, Lance, Kristi, Barb, Glenna & Jane
2. I am thankful for all of the friends and my mother-in-law that cared for our girls during and after Jeff got out of the hospital.
3. I am thankful for our incredible family group that came over Monday night with Hot Fudge Sundaes and time for prayer.
4. I am thankful that Ainsley is at a wonderful school, and that she has started out first grade with excitement and enthusiasm.
5. I am thankful that Jeff is on the road to recovery!!!! And, that his Bells Palsey is gone!!!!!
6. I am thankful for a little girl named Ruby who makes me smile everytime I look in the rearview mirror at her in her new car seat.
7. I am thankful that my Mom's Ovarian Cancer was stage 1, and that the doctors believe they got it all!
8. I am thankful that my sister Barbara is taking life one day at a time!
9. I am thankful that we are going to our lakehouse after six long weeks on Saturday!
10. I am thankful for thankful Thursdays which cause me to reflect on my many blessings!
Love,
Diana
Tuesday, August 28, 2007
My 1st Slide Show Test!
Thanks Kim from 3Peanuts for teaching me how to add a slide show.... I have many goals for this blog. Hopefully, before the year ends it will have a much needed makeover. Danielle, I will be following up with you! I hope you are all enjoying a great night wherever you are!
-Diana
-Diana
Jeff Update
I felt like I had to give Ainsley center stage yesterday. But, now that we are in to day #2 of first grade I wanted to do an update on Jeff. You all have been so faithful in checking in on us. And, for praying. Thank you so much for both!!
We saw Jeff's Neurologist last Thursday. She believes that Jeff has an illness called "Acute Disseminated Encephalomyelitis, or ADEM." Not a big shocker that this frustrating condition would also have a frustrating name to pronounce!! Anyway, ADEM is characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages the myelin which is the protective covering of nerve fibers. She described it to me as "Jeff's immune system is fighting internally with his central nervous system." ADEM is sometimes mis-diagnosed as a severe first attack of MS. Jeff will be back in the MRI tube on Friday so they can see how his brain and spine are. We are hopeful that they see dramatic improvements.
We have learned that there is NO cure for ADEM. However over the next 3-6 months it should be gone, and Jeff should start feeling "normal" again.... As of today his Bells Palsey is gone! He is back to work, and he really looks great. His biggest enemy right now is fatigue. He has to really listen to his body, and rest when he is exhausted. Fortunately, he runs his own business and he can work at his own pace. This alone has been humbling for my precious husband who does not know how to do anything in first gear!!
As we take pause and reflect on the last six weeks it has been so full of blessings. The blessings of friends and family reaching out to us, the blessing of women here caring and praying, the blessing of our family group that showed up at our house last night just to pray with us. And, yes the blessing of humbleness, and learning that above all things we need to trust, and often times we just need to wait and be still!!!!
Take time to be still today and count your blessings!
Love,
Diana
Monday, August 27, 2007
Our precious pearl is a First Grader!!!
We honestly can't believe that Ainsley started first grade today! Wasn't it yesterday that I was off to Baptist Hospital to be induced?
It was a priceless day! It was all about Ainsley today! The way it should be when you start first grade!!!! She agreed to let me help with her hair! She has agreed to let me do it on picture day too! :) We made pancakes, packed her lunch, dropped off Ruby at a neighbors, and headed to Chapel Hill Academy! My favorite memory will be Jeff walking her in!!!!
She had a wonderful first day, and we are so excited for her!
I hope to be back blogging on a more regular basis now that Ainsley is in school, Jeff is on the mend, and I can take a deep breath... I look forward to "chatting" with you again soon!
Blessings,
Diana
Tuesday, August 14, 2007
The "calm" after the storm....

This seemed like an appropriate picture today based on the chaos going on around here lately. Sorry it has taken me a week to post.... This is a photo that friends of ours sent us today of our trampoline up at our lake house. After a huge storm last night this is where it ended up... Thankfully, this is the extent of the damage we received.
Jeff and I were unfortunately back at the ER yesterday. He developed Bells Palsy on the left side of his face on Sunday night. Another brain MRI was ordered, and we were encouraged to hear that things look the same or better than his original scans done about two weeks ago. It seems to be unanimous that our medical team of doctors still do not have a definitive diagnosis for what is going on in Jeff's body. I will admit that it has been both frustrating and discouraging. He was doing so great the last few days, that this set-back was really upsetting for us, especially Jeff. We will continue on our current treatment plan until August 18th. We will then return to his Neurologist for further tests on the 23rd. In the meantime, we pray and pray for clarity!
Like all trials, we have been blessed in so many ways throughout this difficult time. That list will make a great "thankful Thursday" entry this week! Just know that we have been surrounded by loving people that continue to shower us with acts of kindness!
We are hanging in there!
Blessings,
Diana
Sunday, August 5, 2007
Home Sweet Home!
Well the homecoming for Jeff was not quite as celebratory as the one we had when we came home from China, but the feeling was similar. One word comes to mind, thankful...
Jeff came home from the hospital yesterday. We clearly understand that he has a long way to go in making a full recovery. Considering we still don't know exactly what he has, makes his prognosis complicated. But, we do believe he will get better, we just don't know when...
Today I was trained by our Home Health Care Nurse to administer Jeff's daily IV dose through his "pic" line. The patient gave me the clearance to do it again tomorrow!!
I just want Jeff to feel better. He is exhausted and he has a lot of back pain. I am so hopeful that the catheter will come out no later than Tuesday of this week. That will alleviate a lot of his dis-comfort and it will make it easier to get around.
That is all for now, I just wanted you all to know that he is home sweet home!
Blessings,
Diana
Friday, August 3, 2007
We'd rather be boating......
Water and boating are Jeff's passions. The minute we pull onto Portage Lane I can see him relax. There is just something about this magical place that we love. I am hoping that we will be there again soon. It will be a great place for Jeff to rest and get his strength back again!
There is a chance Jeff will be released this weekend. It all depends how he feels tomorrow after being off of the steroids again. Last time they took him off is when he had one of his worst days. We are all set-up for home health care to help us with the administering of drugs through his "pic" line. I guess I will be trained to help with that... I hope he likes his nurse!!
Greg is back, my sister is back, and Jeff's Mom arrives tomorrow. It will be nice to have extra help with Jeff and the girls!
I will let you know when he is home!
Blessings,
Diana
Thursday, August 2, 2007
So much to be thankful for!
One week ago, I never expected to be creating this week's post from the couch in Jeff's hospital room. Regardless, of my current situation I have so much to be thankful for.
"I have learned the secret of being content in and any and every situation, whether well fed or hungry, whether living in plenty or in want. I can do all things through him who gives me strength." Ph 4:12-13
Today I give thanks for.....
1. Jeff's Internist, Neurologist, Urologist, and Infectious Disease Team
2. The nurses and assistants that have patiently taken care of him and taken an interest in our family.
3. Greg - Jeff's brother who helped me so much by jumping on a plane to just sit with Jeff when I could not be at the hospital with him from Sunday - Wednesday.
4. Greg again - for loving his brother so much, that he is coming back again tomorrow night!
5. For our incredible family group who have supported us thru this trial
6. For my very special girlfriends who have been there to help this week with the girls, meals, laundry, etc. Thank you Liz, Robyn, Sally, Jenny, Jen W. and Kristi!! What a blessing you are to me and my daughters!
7. For my sister Barb who knows exactly what I am going through and has been there for me across the miles.
8. For my Daddy - For his successful cataract surgery that was performed yesterday in TX.
9. For my parents - For wanting to be here to help...
10. For the emails, phone messages, cards, flowers, etc. that have been sent our way this week
11. For Ruby Tuesday - It was such a special day!
12. For Ainsley - For being such a good girl and awesome big sister this week.
13. For the many friends who emailed us to make sure we were not involved in the horrific bridge accident in Minneapolis yesterday.
14. For all of you that have been checking in on Jeff this week!
15. For Jeff - for enduring a brutal week with grace and hope!
"Give thanks in all circumstances..." TH 5:18
Blessings,
Diana
Diana
Wednesday, August 1, 2007
Some days are better than others...
First of all, thank you for your sweet messages. What a gift to be lifted up in prayer by all of you. I never knew when we entered into our adoption journey that I would be touched by so many people I may never meet personally. What a priviledge. Thank you!
Secondly, our hearts go out to the familes affected by the bridge accident in Minneapolis. I am a University of Minnesota graduate, and I have traveled along that bridge many times. The hospital that Jeff is at, is only about 10 miles from the accident. When I left tonight the hospital went into code orange status. They were preparing for many victims.
Lastly, I am thankful that Jeff had such a sweet day yesterday with the pearl and the ruby! It made up for the lousy day he had today. We had some setbacks that were just disappointing. The doctors have made the following diagnosis in spite of one test for Lymes that is still pending. Jeff is being treated for "Lymes Disease of the Brain and Spine." As awful as it is, this disease is treatable and we are grateful for that.
These are the times when we depend solely on our faith (and sense of humor) to get us through. Jeff and I have incredible friends that have helped us with the girls. It is getting harder and harder every day for me to hand over Ruby to anyone. She has been doing so well, and I just don't want her to take a step back in her attachment with us. She is incredible! And, Ainsley is being a rock star and helping me by "going with the flow" which is not really Ainsley's style.
I will post again, when we have news of a departure. Until then if you could pray for Jeff. He needs to relax and just be a patient. This disease needs to run its course, and unfortunately that may take a while. Most likely he will be home this weekend now that he has a "Pic" line in for his medication.
Thank you again for your prayers. We will continue to appreciate our good days, and try to patiently wait (sound familiar) for Jeff's health to improve!
Blessings,
Diana
Secondly, our hearts go out to the familes affected by the bridge accident in Minneapolis. I am a University of Minnesota graduate, and I have traveled along that bridge many times. The hospital that Jeff is at, is only about 10 miles from the accident. When I left tonight the hospital went into code orange status. They were preparing for many victims.
Lastly, I am thankful that Jeff had such a sweet day yesterday with the pearl and the ruby! It made up for the lousy day he had today. We had some setbacks that were just disappointing. The doctors have made the following diagnosis in spite of one test for Lymes that is still pending. Jeff is being treated for "Lymes Disease of the Brain and Spine." As awful as it is, this disease is treatable and we are grateful for that.
These are the times when we depend solely on our faith (and sense of humor) to get us through. Jeff and I have incredible friends that have helped us with the girls. It is getting harder and harder every day for me to hand over Ruby to anyone. She has been doing so well, and I just don't want her to take a step back in her attachment with us. She is incredible! And, Ainsley is being a rock star and helping me by "going with the flow" which is not really Ainsley's style.
I will post again, when we have news of a departure. Until then if you could pray for Jeff. He needs to relax and just be a patient. This disease needs to run its course, and unfortunately that may take a while. Most likely he will be home this weekend now that he has a "Pic" line in for his medication.
Thank you again for your prayers. We will continue to appreciate our good days, and try to patiently wait (sound familiar) for Jeff's health to improve!
Blessings,
Diana
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