Thursday, September 30, 2010

Bye Bye Spleen!! Surgery Update!


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Sienna Grace proved once again to her Daddy and me, along with her nurses, three members of the anesthesia team, and the awesome Dr. Steve that she is a ROCK STAR patient! (Quite honestly, braver than most adults we know!!)

Surgery did not start officially until 2:13.. She never complained about being hungry once we arrived at 11:00. She was sweet to the nursing staff, loved the child life specialist who provided a hospital gown for Kit and ID bracelets for Kit, her Hello Kitty, and her Panda from her BFF, Nadi. Geri also gave her toys to play with and a princess crown craft.

At 1:30 Jeff and I went to the OR with her, along with Kit, Kitty, Panda, and her beloved blanket! This was different than June, where Grandma and I said goodbye before they took her away. This time they rolled in a very alert Sienna on her bed with Mom and Dad by her side in scrubs, hats, and masks.. Instead of terrified, our future doctor took in the room, the lights, the equipment.. We chose an IV this time to put her to sleep. She watched (like she always does) without a whimper. The Anesthesia team could not get over how sweet and brave she was.. And with no fear she peacefully went to sleep while I sang "Jesus Loves Me" in her ear. Only God can give a child such peace and grace in this type of situation. Jeff and I left with more respect than we already had for our amazing daughter!

We are now waiting for the call that we can see her soon. All we know now is that the surgery went great!!! Her very large spleen was removed successfully with a laprascope! Praise God for answered prayers!!!!!! And, for the amazing team here at Children's!!

Thank you for lifting up Sienna Grace today! God is so faithful in the way He continues to watch over our precious and brave little girl! Praying she hangs in there as the pain meds wear off.. I will be having a slumber party with Sienna tonight!! Ready to do whatever she needs to get thru the next 12-24 hours and beyond!

More soon! THANK YOU!!!



Wednesday, September 29, 2010

Sienna's Surgery....

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Thank you to all of our precious friends and family who have texted us today, emailed us, left messages. What a blessing to know that in such a short time, Sienna has touched so many of you. Some we may never meet. Thank you!

Sienna's surgery is scheduled for 12:30 tomorrow. Our prayers for our sweet girl are that her Spleen will be removed laprascopically! For protection for her from the risk that she will face in the days, month and years ahead for infection without her spleen to filter. And that by doing this her blood levels will stabilize, her hemoglobin levels will increase and her need for transfusions will go down.

We have been blessed with a wonderful Hematologist, Surgeon and Pediatrician. And ultimately we are blessed with the power of prayer and the Greatest of All Physicians who I know will be in that operating room holding her hand! The One who called her by name long ago to be in our family. The One who knew on this very day she would be in a wonderful hospital, safe and loved! The One who loves her even more than we do! For that we are eternally grateful!

"For I am the LORD, your God,
who takes hold of your right hand
and says to you, Do not fear;
I will help you."
Isaiah 41:13








{Black and White Wednesday} Mr. and Mrs. Camp H!!

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Some of you have followed our journeys to Ruby and Sienna and you know that our girls have stayed at "Camp H" while we have been gone. Jeff and I are blessed with the most amazing friends, and role models for our girls in Jon & Liz. They love our girls like their own.

Again this week as we prepare for Sienna's surgery, Jon and Liz will be there for us. They will willingly help with our kids, they will lift us up and they will encourage us. Again, they will bless us!

Two days ago I had the opportunity to finally do something for them! They have a special wedding anniversary coming up (and a big birthday) and Liz asked me to take their pictures. We went down to one of the old grain mills in the city. We got some fun shots! I have posted a few more here if you want to take a peek!

Thank you Liz and Jon for loving our family! We treasure your friendship!

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Sunday, September 26, 2010

Ainsley!

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I do not recall the last time "The Pearl" asked me to take her picture. But, she had a friend over today, and as you can see they were playing "makeover." So, of course I obliged!

Ainsley had a big time yesterday at a fun rollerskating, purse making, pizza eating, facial spa night, game playing, movie watching slumber party! I picked her and the birthday girl up at 10:00am and they looked pretty good for staying up late! They faded quickly after a lengthy play date over here.

Adjusting to 4th grade has been harder than Ainsley expected. She has more homework than she has ever had.. And, of course the accountability factor has gone up. She has been working hard to get in to the rhythm of her teachers expectations. She is making progress!!! She started with A+, A+ on her first two tests, so of course we were all excited!! Hoping she can keep up her grades, and the fun social side of things too.

She continues to grow in her role as the big sister. Of course there are challenges in being the oldest. Some days "the littles" challenge her patience.. But, I love seeing the ownership she takes in caring for them too.. We went on a walk tonight.. Sienna was riding her bike and approaching a steep hill. It was Ainsley that ran to catch up with her and make sure she didn't go to fast. And, then she stuck with her the rest of the way home making sure she made it safely. They may annoy her some days, but she loves those girls, and she would do anything to protect them. I love seeing it in action!

Ainsley is trying new things this fall... Volleyball, and voice lessons from her music teacher at school! She seems to be enjoying both! Her piano teacher has had some serious health issues, so we are praying she can come back soon.

For now, she is just trying to figure out how to succeed in 4th grade when she just wants to play all day! :)



Saturday, September 25, 2010

Just pictures!!

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Gorgeous headband from a little boutique in Houston (Thanks Kim)!
Velour hoodie - Gap Kids!!

I am playing photographer this weekend for two families so Sienna was
letting me practice on her! These opportunities are rare lately so I had to jump on it.
Ruby decided yogurt and "Curious George" was a much better use of her time! :)
And, Ainsley was having fun roller skating with some friends. Hopefully all three will humor me soon so I can try to get a Christmas card!!





Friday, September 24, 2010

A Special Daddy!

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You may remember that it took Sienna a while to love and trust her Daddy... We always assumed it was because it was Jeff that "extracted" her from the Civil Affairs office in Hunan on March 1st. She adored her foster mother, but it is clear to us now she was not very close to her foster father. So, it makes a lot of sense that it took her a long time to trust her Daddy!

Over time I have watched this relationship evolve into something very special. When she wakes up the first thing she asks me is, "where's Daddy." When she gets hurt, she asks me "to call Daddy." He is her go to guy! Her safety net. Her buddy! She doesn't love him from afar anymore. She LOVES him!

When Sienna had her first transfusion and dental surgery Jeff had to be out of town. She kept a chair open for him in her hospital room just in case he was able to come.. We texted him updates, and sent him pictures. He was the last person she talked to before she was taken from me.

Monday evening we found out that Sienna's Hbg (Hemoglobin) levels were at a dangerously low level, even for her. Jeff had just landed in Chicago when I got this news. Which meant the next morning we were heading to Children's for transfusion #2. One week earlier than we hoped. I texted Jeff the news. He never left the terminal, forty minutes later he was on a flight back home to be with his girl.

She walked into that transfusion appointment dressed in pink from head to toe, and so excited that her Daddy was there, her go to guy, her safety net, her buddy!

September 30th our precious girl will be having surgery on her spleen. One thing is for sure, she will not be alone.. She will have two people that love her more than we could have imagined possible six months ago. And, that special chair in her room will be occupied by one very special person, her amazing Daddy!


Wednesday, September 22, 2010

Just Because....

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Just because my little MJ girl looked so cute today I had to post these...

Everyday I just smile as I see this child skip down the hall... (Most days lately in her pink cowboy boots.) Ruby is so joyful and full of life. I feel very blessed to have a front row seat! I just can't wait to see what God does with this precious child! I just know it is going to be something very special!!

Ruby thank you for reminding us everyday that life is priceless. That sweet words like, "Have fun at your meeting" make my day. Or how you can walk outside and enthusiastically say, "It's a beautiful day Daddy!" What you have learned about caring, sharing, and sacrifice in the last six months has been amazing. Your Daddy and I are so very proud of you! And, one thing we do know about you Ruby is that we can always count on you.. You will never let life's trials get you down. You will tackle the tough stuff with grace and a smile. You are a light sweet Ruby Mei. We love you to the China moon and back!

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